Return to Further Infomation

Further Information :
Resources on Sex and Sexuality for Health and Social Care Professionals

Table of Contents

GENERAL INFORMATION
Organisations
Books
Journals
Papers
Booklets
Websites
Films
Helplines
Services and self-help groups
Policies

SPECIALIST LITERATURE FOR VARIOUS PROFESSIONS
Medicine
Nursing
Social Work
Occupational Therapy
Sex Therapy
PAs and Care Work
Physiotherapy

SPECIALIST ORGANIZATIONS AND LITERATURE ON VARIOUS SUBJECTS
Abortion
Adolescents
ALS (amyotrophic lateral sclerosis) / Lou Gehrig’s disease
Arthritis
Asperger’s Syndrome
Autism
Autonomic Dysreflexia
Back Pain
Birth Control
Blindness — see Visual Impairment
Brain Injury
Breathlessness
Brittle Bones (Osteogenesis imperfecta)
Cancer
Cardio-vascular problems
Cerebral Palsy
Continence and Incontinence
Cystic Fibrosis
Dating (NB dating sites for vulnerable people attract preditors)
Deaf-Blind
Deafness — see Hearing Impairment
Diabetes
Dying
Erections
Fatigue
Fibromyalgia
Hate Crime
Hearing Impairment
Hip Replacement
Hysterectomy
Learning Dificulties
Lesbian, Gay, Bisexual, Trans and Intersex (LGBTI)
Loneliness and social isolation
Masturbation
Medications that interfere with sexual function and pleasure
Mental Health
Menopause
Motor Neurone Disease
MS
Muscular Dystrophy
Older People
Parkinsons Disease
Pain During Intercourse
Peyrones Disease
Phimosis
Psoriasis
Prostatitis
Rehabilitation
Safer Sex
Semen Allergy
Sex and Relationship Education (SRE)
Sex Toys
Sexual Abuse
Sexual Advocacy
Sexual Diversity
Sexual Services for Disabled People
Short Life Expectancy
Speech Impairment
Spina Bifida
Spinal Injury (see also Autonomic Dysreflexia)
Stammer
Stroke
Trauma
Under-age Genital Cutting
Visual Impairment
War Injured Military

GENERAL INFORMATION

Organisations

fpa provides support in sex and sexual health to professionals throughout the whole of GB by running courses, offering training and publishing information
www.fpa.org


College of Sexual and Relationship Therapy provides information and lists sex therapists around the country
020 8543 2707
info@cosrt.org.uk
www.cosrt.org.uk

BASE — British Association of Sexual Educators provides support by engaging with professionals in all disciplines who are involved in Sexual Health
http://www.baseuk.org

Porterbrook Clinic situated in Sheffield and run a monthly schedule of clinical lectures http://www.shsc.nhs.uk/our-services/specialist-services

SHADA — the Sexual Health and Disability Alliance, set up in 2005 to replace SPOD and support health and social care professionals who work with disabled people and their sexuality. Membership is free and meetings are held twice a year in London
www.shada.org.uk


Counselling Directory to find psychotherapists and counsellors
www.counselling-directory.org.uk

ASAP Ask a Sexual Advocate Professional
www.tlc-trust.org.uk/advocacy

Books

New Joy of Sex by Susan Quilliam 2008 Octopus.
A beautiful, tender book which many can gain from

The Sex Book by Suzi Godson 2002 Cassell.
Modern and wide-ranging

Guide to Getting It On by Paul Joannides 2000 Goofy Foot Press.
Many testimonies by young people make this very real and convincing

The Sex Myth — why everything we are told is wrong by Brooke Magnanti. 2012 Weidenfeld & Nicolson
She reveals scientific proof about the difference between men and women; sex addiction; the sexualisation of children; adult businesses bringing more rape to an area; pornography objectifying women; adult content on the net; trafficked sex slaves; banning of prostitution; and the motivation of the prohibitionists — with all the scams that have falsified the facts.

Sexual Health four volumes edited by Mitchell S Tepper and Annette Owens, with contributions addressing the meaning of sexual health, the effects of ignorance or neglect, and the role of love, touch, and communication. Volumes 1: psychological foundations; 2: physical foundations; 3:moral and cultural foundations; and 4: state-of-the-art treatments and research

Intersectionality, Sexuality and Psychological Therapies: Working with Lesbian, Gay and Bisexual Diversity by Roshan das Nair and Catherine Butler 2012 Wiley-Blackwell

Sexuality and Learning Disability – a resource for staff by Claire Fanstone and Zarine Katrak 2003 fpa

Holding On, Letting Go – sex, sexuality and people with learning disabilities by John Drury, Lynnne Hutchinson and Jon Wright 2000 Souvenir Press. Provides sensible advise and support for parents

The Ultimate Guide to Sex and Disability 2004, Cleis Press Sensitively written with many direct quotes from disabled people on how to change preconceived ideas about sex in order to gain more pleasure

Books Beyond Words using pictures on subjects of sex and sexuality www.rcpsych.ac.uk/publications.bbw

Enabling disabled people to have and enjoy the kind of sexuality they want by Alex Cowan and Lorna Couldrick (2013) chapter 6 in: Women, sexuality and the political power of pleasure, Eds Jolly S, Cornwall A & Hawkins K. London: Zed.

Good Vibrations Guide To Sex by Cathy Winks


Journals

International Journal of Sexual Health

Journal of Sexual Medicine

The Journal of Sexuality and Disability papers of interest to health and social care workers

British Journal of Social Work has some articles about sex

Contemporary Sexuality — the international resource for educators, researchers and therapists published by the American Association of Sexuality Educators, Counselors and Therapists

Sexual and Relationship Therapy American — journal published by Taylor Frances online http://www.tandfonline.com/loi/csmt20

Papers

Why Don’t Healthcare Professionals Talk About Sex? A Systematic Review of Recent Qualitative Studies Conducted in the United Kingdom Kerry Dyer, BSc Hons and Roshan das Nair, PhD, CPsychol, AFBPsS. 30th July 2012 Journal of Sexual Medicine DOI: 10.1111/j.1743-6109.2012.02856.x Abstract at: http://onlinelibrary.wiley.com/doi/10.1111/j.1743-6109.2012.02856.x/abstract

The Health Benefits of Sexual Expression White Paper published in 2003 in New York by the Katharine Dexter McCormick Library Planned Parenthood of America in cooperation with the Society for the Scientific Study of Sexuality

Booklets

Contact-a-Family Booklets about young people with all disabilities, with excellent directories and resources. Edited by Helen Christophers and published by Contact-a-Family and available online:

http://www.cafamily.org.uk/publications.html?scat=39

http://www.cafamily.org.uk/pdfs/GrowingUpYoungPeople.pdf

http://www.cafamily.org.uk/pdfs/GrowingUpParents.pdf

http://www.cafamily.org.uk/pdfs/GrowingUpTeachers.pdf


Parent guide: Preparing for adult life and transition in Northern Ireland
http://www.cafamily.org.uk/media/597218/ni_transition_currentlastupdatedsep12.pdf

Websites

www.cosrt.org.uk/sexual_difficulties.asp reliable sexual advice from sex therapists

http://sexuality.about.com

Outsiders.org.uk wide range of information about sex and disability, including FAQs of the Sex and Disability Helpine

Elfrida Society website provides good respources and sexual training is included in their work www.elfrida.com/publications.html

Disability and Sex Resources http://incurable-hippie.blogspot.co.uk/2011/11/disability-and-sex-resources.html

Sexuality and Disability Webliography a huge international resource which has sadly not been kept up to date
www.bccpd.bc.ca/docs/sex_disabilitywebliog.pdf
http://www.disaboom.com/sexuality-and-disability

Sexability Blogspot www.sexsci.me

GreatSexAfter40.com advice for people into a ripe age

Youthnet good sex advice for young people www.youthnet.org

www.scarleteen.com down-to-earth sex information and help for teens and 20s

http://www.thesite.org/sexandrelationships

www.nhs.uk/Livewell/Sexandyoungpeople

Guide to Getting it On online with many useful links http://www.goofyfootpress.com/

Come As You Are website contains useful articles on many topics not covered elsewhere for example adapting sex toys to suit sensitivity, allergies, etc www.comeasyouare.com/sex-information

Films

The Love Programme — Relationships and Sexuality, a Young Person's Perspective 2012
made with people with learning disabilities by Kids. Available on YouTube. It is in three different parts. You can search for the name of the film on YouTube, or use the following web address:-

Part one: www.youtube.com/watch?v=4ASCysU1wto&feature;=plcp
Part two: www.youtube.com/watch?v=fAzCXUz9sWw&feature;=plcp
Part three: www.youtube.com/watch?v=KfNd7BUENHo&feature;=plcp


Want 2007
outlines Loree Erickson’s sexual story as a queer woman with a disability. Through her film, she tells the viewer how she wants to be seen: as sexy, sexual and desirable. www.femmegimp.org

The Last Taboo 2012
directed by Alexander Freeman, telling the story of six people with various physical disabilities, sharing their perspectives on intimacy, relationships, and speaking of misconceptions regarding disability, identity, gender, attraction, beauty and sexuality. http://thelasttaboodocumentary.com

Planet Snail 2012
directed by Korean Yi Seung Hun. Award-winning poetic documentary about a couple, he deaf-blind and she with a spinal problem, and how they navigate their marriage

Scarlet Road 2012
A australian documentary by Rachel Wotton on the rights of sex workers to see people with disabilities, and all that this entails www.scarletroad.com.au

The Sessions 2012
Directed by Ben Lewin. American feature film based on a true story. Mark, a 36- year-old man who uses an iron lung, decides he no longer wishes to be a virgin. With the help of his therapist and priest, he contacts Cheryl, a professional sex surrogate. The film follows the fascinating relationship which evolves between Cheryl and Mark as she takes him on his journey

(Sex)abeled: Disability Uncensored — University of California's Disabled Student's Union's film about sex and disability. The film is free to view online, and it's possible to order a DVD. The link also has useful questions and resources:
http://www.sexsmartfilms.com/free-videos/sex-abled-disability-uncensored

Helplines

Sexual Health Direct fpa 0845 122 8690

Sexual Advice Association – helpline and booklets on a range of male and female sexual difficulties 020 74867262 www.sda.uk.net

NHS Direct (England and Wales) 0845 46 47 and NHS 24 (Scotland) on 08454 24 24 24. FPA (Northern Ireland) 0845 122 8687

Sex and Disability Helpline 0707 499 3527 sexdis@outsiders.org.uk

Contact a Family 0808 808 3555

London Lesbian and Gay Switchboard 0300 330 0630 daily 10am – 11pm

Rape Crisis 0808 802 9999

Survivors UK male rape and sexual abuse 0845 122 1201

Cancer and Sex Macmillan Support Line free on 0808 808 00 00

Traumatic Brain Injury 0808 800 2244 helpline@headway.org.uk


Services & Self-help Groups

College of Sexual and Relationship Therapists the place to find a sex therapist www.cosrt.org.uk

Relate offers advice, relationship counselling, sex therapy, workshops, mediation, consultations and support face-to-face, by phone and through thier website www.relate.org.uk

Relationships-Scotland network of affiliated local services that provide relationship counselling, family mediation, child contact centres and other family support services www.relationships-scotland.org.uk

Outsiders for physically and socially disabled people www.outsiders.org.uk

Nightclubs where People with Learning Disabilities can find partners type this into Google with your town, to find your local club

Respond work around abuse and learning disabled people 0808 808 0700 www.respond.org.uk

Asexual Visibility and Education Network AVEN for people who don't experience sexual attraction www.asexuality.org

Circles UK for people who might sexually offend www.circles-uk.org.uk

Press for Change advises people on transgender law www.pfc.org.uk

Policies

SHADA have drafted policies for many kinds of setting and situations, which you can use to adapt to suit yourselves www.shada.org.uk

Zoe Grace Cousins will help write policies 01379 851959 / 07813035763 zoeleapfrog@gmail.com

Adults with learning disabilities personal and sexual relationships: A policy for providers in Westminster NHS City of Westminster PLD sexual health booklet. The policy was drawn up in 2012 association with Image in Action and fpa. Also contains a list of local organizations and services in London Download PDF



SPECIALIST LITERATURE FOR VARIOUS PROFESSIONS

Medicine

Journal of Sexual Medicine www.onlinelibrary.wiley.com/journal

The Institute of Psychosexual Medicine 020 7580 0631 admin@ipm.org.uk Has a comprehensive list of doctors throughout the country who are trained in psychosexual medicine www.ipm.org.uk

Nursing

Human Sexuality in Nursing Care by Jean Glover 1985 Croom Helm Ltd., This book is really helpful and inspiring.It is out of print but still available online

Social Work

Sexuality and Social Work by Julie Bywater and Rhiannon Jones 200

Sexual issues in social work by Steve Myers and Judith Milner 2007

Occupational Therapy

The impact of assistive equipment on intimacy and sexual expression Taylor Bridget (2011) British Journal of Occupational Therapy, 74(9): 435-42

Sexual Expression and Occupational Therapy Lorna Couldrick (2005). The British Journal of Occupational Therapy, 68(7): 315-318

Survey of occupational therapy students’ attitudes towards sexual issues in clinical practice Jones Mairwen K, Weerakoon Patricia Pynor, Rosemary A (2005). Occupational Therapy International, 12(2): 95-106

Occupational therapist involvement in sexuality counselling with clients with rheumatoid arthritis. Focus on research Haslam L(2001)B ritish Journal of Occupational Therapy, 64 (9): 448

Sexual reconstruction after the "loss of manhood": implications for occupational therapy Yau M (2011).Occupational Therapy Australia, 24th National Conference and Exhibition, 29 June - 1 July 2011; Australian Occupational Therapy Journal, 58: Supplement: 127

Proposing a new sexual health model of practice for disability teams: The Recognition Model Couldrick L, Sadlo G, Cross V (2010). International Journal of Therapy and Rehabilitation, 17(6): 290-8

Addressing sexuality with adult clients with chronic disabilities: occupational therapy’s role Hattjar B, Parker JA, Lappa CL (2008) OT Practice, 13(11): Suppl. (CE-1-CE-8, 2p)

Sex and occupational therapy: contradictions or contraindications? Pollard N, Sakellariou D (2007) British Journal of Occupational Therapy, 70(8): 362-5

Sexual Orientation and Occupation: Gay Men and Women’s Lived Experiences of Occupational Participation Bergan-Gander Rebecca, von Kurthy Heidi (2006). The British Journal of Occupational Therapy, 69(9): 402-408

Psycho-social sexual rehabilitation: Part Two. A survey on different facets of sexual rehabilitation in the psychiatric field of occupational therapy Fouche LO (2006). South African Journal of Occupational Therapy, 36(1): 2-5

Understanding issues of sexuality and privacy for individuals with developmental disabilities Preston L, Lewin JE (2006) OT Practice, 11(22): Suppl. (CE-1-CE-8, 2p)

Intimate relationships and Sexual function list of resources for occupational therapists produced by the College of Occupational Therapists in 2013 www.cot.co.uk/hot-topics/hot-topics


Sex Therapy

College of Sex and Relationship Therapy holds meetings and runs a website were you can find trained sex therapists around the country and where you can find reliable sexual advice www.cosrt.org.uk

Pink Therapy trains professionals and para-professionals on gender and sexuality issues, including BDSM, asexuality and psychosexual therapy. The website provides a list of gay and sexually diverse therapists around the country www.pinktherapy.com

Directory of Sex Therapists http://spokzpeople.org.uk/directory.asp

Sexual bodywork as an adjunct to sex therapy? Gianotten WL. Nordisk Sexologi 1997, 15; 20-36

Sex Education

Sex and relationships education
A guide for independent schools and those working with them
http://www.sexeducationforum.org.uk/media/5006/sre_independent_school_guide_web.pdf

Sex Education and Children and Young People with an ASD
http://www.autism.org.uk/living-with-autism/communicating-and-interacting/sex-education-and-children-and-young-people-with-an-asd.aspx

PAs and Care Work

Sexuality and Access Project Summary highlighting the need for safe discussions around sex between client and PA to avoid assumptions and unclear boundaries making the relationship difficult. Cory Silverberg and Fran Odett Springtide Resources. Downloadable PDF ebookbrowse.com/sexuality-and-access-survey-summary-pdf

Two Lovers with Disabilities Need Help www.disaboom.com/sexuality-and-disability/two-lovers-with-disabilities-need-help

Physiotherapy

Pelvic Floor Physiotherapy and Female Intimacy in Multiple Sclerosis — by Taina Vahtera. Physiotherapist, Masku Neurological Rehabilitation Centre, Finland. http://www.msif.org/en/about_ms/ms_by_topic/continence/articles/pelvic_floor_phy.html

Sex and Relationship Education (SRE)

UK sex and relationships education fails to prepare young people for modern day life Brook's Press Release 12-10-2011 www.brook.org.uk/application/brookpr/index.php

Sex and Relationship Education for Young People with Physical Disabilities: a booklet for teachers http://www.cafamily.org.uk/

No Sex Education Please, We're Muslim! by Irna Qureshi, anthropologist and writer on British Asian culture www.huffingtonpost.co.uk/irna-qureshi/muslim-sex-education-_b_2090621.html

Sex and the 3 Rs: Rights, Responsibilities and Risks - A Sex Education Package for Working with People with Learning Difficulties 2008 paperback by Michelle McCarthy and David Thompson

SREresouces.com provides learning resources and information about sex for young people with disabilities. www.sreresources.com

Sex and relationships education — a guide for independent schools and those working with them
http://www.sexeducationforum.org.uk/media/5006/sre_independent_school_guide_web.pdf

Sex Education and Children and Young People with an ASD
http://www.autism.org.uk/living-with-autism/communicating-and-interacting/sex-education-and-children-and-young-people-with-an-asd.aspx



SPECIALIST ORGANISATIONS AND LITERATURE ON VARIOUS SUBJECTS


Abortion

ImNotSorry.net website featuring women sharing positive and negative stories about their abortions

Adolescents

Adolescents and Sex: The Handbook for Professionals Working with Young People by S. Bekaert 2004 Radcliffe Publishing

Teenage Sexuality: Health, Risk and Education Coleman, J. & Roker, D. 1998 Harwood

Best Practice Guidance for Doctors and other Health Professionals on the Provision of Advice and Treatment to Young People under 16 on Contraception, Sexual and Reproductive Health 2004 Department of Health  http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets

ALS (amyotrophic lateral sclerosis) / Lou Gehrig's disease

ALS & Your Sex Life www.disaboom.com/sexuality-and-disability/als-your-sex-life

Arthritis

Our Relationships, Our Sexuality – a guide for people with arthritis. Arthritis Care

Aspergers

Love, Sex and Long-Term Relationships — What People with Asperger Syndrome Really Really Want by Sarah Hendrichx 2008 Jessica Kingsley http://aspieweb.net/aspergers-sex-difficulties/

Autism

http://autism.about.com/lr/sexuality_and_autism/358731/1/

Sexual Behaviours in Autism: Problems of Definition and Management George Realmuto and Lisa Ruble Journal of Autism and Developmental Devepopment Vol 29 No 2 1999

Articles on Sex and Autism http://nakedbrainink.com

Autonomic Dysreflexia

Broadened Horizons Dr Elliot talks about sex and people who are spinal injured using vibrators, with considerations about automatic dysreflexia
http://www.broadenedhorizons.com/independent-living/sexuality

Autonomic Dysreflexia www.nursingtimes.net/autonomic-dysreflexia/197701.article#

Autonomic Dysreflexia http://www.streetsie.com/autonomic-dysreflexia/

Autonomic Dysreflexia and Vibrostimulation for Men with Spinal Cord Injury by Stanley Ducharme www.stanleyducharme.com/resources/men_with_spinal.htm

Back Pain

Sex and back pain: advice on restoring comfortable sex that has been lost to back pain by Hebert Lauren (1987) published by Greenville ME: IMPACC USA

Birth Control

Family Planning Association fpa www.fpa.org

www.ultimatebirthcontrol.com/

Does Having a Vasectomy Lower Sex Drive? http://contraception.about.com/od/surgicalpermanentmethods/f/Vasectomy-and-Sex-Drive.htm


Blindness — see Visual Impairment

Brain Injury

Sexuality After Brain Injury
http://www.tbistafftraining.info/Presenters/Module6/mod6-presenter.pdf

Sexual difficulties after traumatic brain injury and ways to deal with it (2003) by Ronit Aloni and Shlomo Katz Springfield: Charles C. Thomas Publisher

Sexual changes associated with traumatic brain injury Ponsford J 2003. Neuropsychology Rehabilitation, 13: 275-289

Sexual Dysfunction: Beyond the Brain-Body Connection Balon R. 2011 Basel NewYork Karger

Will Anyone Want to Date Me After a Brain Injury? Adam Anicich
http://www.brainlinemilitary.org/content/multimedia.php?id=7150



Breathlessness

Sexual Health and the Respiratory Patient C. Law 2001 www.bjpcn-respiratory.com/.../Vol3_Num2_March_2009_p2

Sex and Breathlessness The British Lung Foundation, downloadable online

Brittle Bones (Osteogenesis imperfecta)

Sex on wheels
http://www.guardian.co.uk/society/2007/nov/27/disability.health

Cancer

i-Said Sue Lennon works with i-said is an oncology nurse and trained sex therapist. She now trains health professionals in sex and cancer care. www.i-said.co.uk

Intimacy & Sexuality For Cancer Patients and their Partners Tips & Advice for Your Journey of Recovery Dr. Darja Brandenburg. Booklet which is downloadable online

Relationships sex and fertility for young people affected by cancer 2012 Macmillan with downloadable PDF

Sexuality and Cancer if You are Single www.cancerhelp.org.uk

Being Single with Cancer www.asconews.org

The Single Man and Cancer and The Single Woman with Cancer www.cancer.org

www.lgbtcancer.com for lesbians, gays bisexuals and transgendered people with cancer

Association of Cancer Online Resources. Includes a “cancer-sexuality” mailing list www.acor.org

Jo's Cervical Cancer Trust with an online Forum discussing sex www.jostrust.org.uk


Cardio-vascular problems

Sex with a Heart Condition http://www.outsiders.org.uk/leaflets/sex-with-a-heart-condition

Cerebral Palsy

Sexuality of Young Adults with Cerebral Palsy: Experienced Limitations and Needs Diana Wiegerink,Marij Roebroeck, Jim Bender, Henk Stam, Peggy Cohen-Kettenis and Transition Research Group South West Netherlands. Sex and Disability 2011 June; 29(2): 119–128.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3093545/

Sex Tip http://cpmatters.tumblr.com/post/14314771108

Sex with Others
www.sexualityanddisability.org/sexuality/sex-with-others.aspx


Continence and Incontinence

What about sex? For people with a stoma and their partners E Galt and H Hill 2002 Dansac Ltd. An ebook http://www.e-pages.dk/dansac/23/2

The Simon Foundation for Continence a patient-led foundation to bring the topic of incontinence into the open; remove the stigma associated with incontinence; and provide help and hope to individuals with incontinence, their families, and the professionals who provide their care www.simonfoundation.org

Incontience and Sexuality: findings from a qualitative persective Brenda Roe and Carl May 1999 Journal of Advanced Nursing 30(3), 573-579 study which highlights how much more work needs to be done

Leaky Bladder during Intercourse
www.goofyfootpress.com/blogs/PaulsBlog/leaky-bladder/


www.vaginismus.com —
http://www.msif.org/en/about_ms/ms_by_topic/continence/articles/pelvic_floor_phy.html

Speedicath — a catheter for men designed for discretion speedicathcompactmale.coloplast.ca



Cystic Fibrosis

Sexuality, Fertility and Cystic Fibrosis http://www.cysticfibrosis.ca/assets/files/pdf/Sexuality_and_Fertility_AdultE.pdf


Dating

(NB dating sites for vulnerable people attract preditors)

Outsiders a safe peer support and dating club for people with social and physical disabilities www.outsiders.org.uk

2date4love a dating site that enables people who cannot engage in sexual intercourse to meet and experience love, companionship and intimacy www.2date4love.com

Stars in the Sky dating for learning disabled people in London and some other areas www.starsinthesky.co.uk

Beautiful Octopus and other clubs — type learning disability disco into google to find local clubs

Stuttering and Dating – 7 Stuttering Tips For Your Dating Life Chazzler DiCyprian http://stutteringdissolution.com/blog/stuttering-and-dating-7-stuttering-tips-for-your-dating-life

Will Anyone Want to Date Me After a Brain Injury? Adam Anicich
http://www.brainlinemilitary.org/content/multimedia.php?id=7150

Deaf-Blind

Batteries Not Included a sexuality resource pack for working with people with complex communication needs produced by Sense Scotland and Common Knowledge. http://www.ssc.education.ed.ac.uk/courses/db/battery7.html

Talking Sense Summer 2012 (Vol 57 No 2) focuses on sexuality. Available to members www.sense.org.uk/content/talking-sense-our-magazine

Deafness — see Hearing Impairment


Diabetes

Diabetes and Sex: Does It Have to Doom Your Sex Life www.disaboom.com/sexuality-and-disability/diabetes-does-it-have-to-doom-your-sex-life

Dying

An Amateur's Guide to death and dying: enhancing the end of life — by Richard Wagner PhD ACS  2012 Nazca Plains

Erections

Improving Your Erections:- Medical Treatments by Stanley Ducharme http://www.stanleyducharme.com/resources/improve-erections.htm

Fatigue

Fatigue and Sex - Sexual Health and Disability Alliance www.shada.org.uk/?q=node/36

Fibromyalgia

Fibromyalgia and Your Sex Life www.disaboom.com/sexuality-and-disability/fibromyalgia-and-your-sex-life

Hate Crime

Scapegoat: Why We Are Failing Disabled People by Katherine Quarmby 2013

Hearing Impairment

Sexuality education in residential and day schools for deaf students: curricular components and administrative practices by Susan Jacoby an electronic book and thesis done at Gallaudet University in 2005

Sexuality and Intimacy with Hearing Loss www.ifhoh.org/papers/sexual.htm

Hip Replacement

Sex after Hip Replacement www.outsiders.org.uk/leaflets/sex-after-hip-replacement


Hysterectomy

Sex after hysterectomy www.nhs.uk/Livewell/Goodsex/Pages/sex-after-hysterectomy.aspx

Hysterectomy Doesn't Affect Women's Sex Lives http://women.webmd.com/news/20000609/hysterectomy-doesnt-affect-womens-sex-lives-study-finds

Learning Difficulties

Relationships in the lives of people with learning difficulties — a book for people with learning disabilities to learn and understand about sex and relationships published by the Elfrida Society www.elfrida.com/publications

Sexuality and Learning Disability – a resource for staff by Claire Fanstone and Zarine Katrak 2003 fpa

The Love Programme — Relationships and Sexuality, a Young Person's Perspective made with people with learning disabilities by Kids. Available on YouTube. It is in three different parts. You can search for the name of the film on YouTube, or use the following web address:-

Part one: www.youtube.com/watch?v=4ASCysU1wto&feature;=plcp
Part two: www.youtube.com/watch?v=fAzCXUz9sWw&feature;=plcp
Part three: www.youtube.com/watch?v=KfNd7BUENHo&feature;=plcp

Sex and the 3 Rs: Rights, Responsibilities and Risks - A Sex Education Package for Working with People with Learning Difficulties 2008 paperback by Michelle McCarthy and David Thompson

Creating a Social/Sexual Skills-Building Program — a curriculum which guides staff when creating a program to enhance social/sexual skills You And I/National Institute for People with Disabilities https://secure2.convio.net/yai/site/Ecommerce?store_id=1781

Creating a Social/Sexual Skills-Building Program — a curriculum which guides staff when creating a program to enhance social/sexual skills — You And I/National Institute for People with Disabilities (pioneering organisation) https://secure2.convio.net/yai/site/Ecommerce?store_id=1781

Taking a Personal Approach: a parents guide to personal budgets handbook — www.kids.org.uk/mip

Principles of safeguarding and protection for learning disability workers — by Simon Bickerton, identifies different types of abuse and the possible signs and symptoms that might indicate that abuse has occurred, and explores why people with a learning disability might be more vulnerable to abuse and what you must do if abuse is suspected or alleged http://www.bild.org.uk/our-services/books/good-support/principles-of-safeguarding-and-protection

Our sexuality too! Looking at discrimination suffered by people with learning difficulties from the gay, bisexual and transgender communities — http://peoplefirstltd.com/what-we-do/publications/

Everything you want to know about Safe Sex — a useful guide on safe relationships by and for people with learning difficulties http://peoplefirstltd.com/what-we-do/publications/

How to Turn Dreams to Reality — an fpa course for people with learning disabilities on sex and relationships

Sterilisation and women with learning disabilities: An international issue S Earle, C Komaromy and L Layne (eds) (2012)

Lesbian, Gay, Bisexual, Trans and Intersex (LGBTI)

Pink Therapy trains professionals and para-professionals on gender and sexuality issues, including BDSM, asexuality and psychosexual therapy. The website provides a list of gay and sexually diverse therapists around the country www.pinktherapy.com

International Lesbian, Gay, Bisexual, Trans and Intersex Association, ILGA publishes online resources related to multi-discrimination of people with disability and LGBTI people http://www.ilga-europe.org/home/issues/multiple_discrimination/resources_on_multiple_discrimination/disabilit

Intersectionality, Sexuality and Psychological Therapies: Working with Lesbian, Gay and Bisexual Diversity by Roshan das Nair and Catherine Butler 2012 Wiley-Blackwell

Sexuality and Access Project highlighting the need for safe discussions around sex between client and PA to avoid assumptions and unclear boundaries making the relationship difficult. Cory Silverberg and Fran Odett Springtide Resources. www.ebookbrowse.com/sexuality-and-access-survey-summary-pdf

London Lesbian and Gay Switchboard 0300 330 0630 daily 10am – 11pm

Gay Youth UK lists a range of UK switchboards, both local and national http://www.gayyouth.org.uk

Want 2007 outlines Loree Erickson’s sexual story as a queer woman with a disability. Through her film, she tells the viewer how she wants to be seen: as sexy, sexual and desirable. www.femmegimp.org

Secret Loves, hidden lives? Exploring issues for people with learning difficulties who are gay, lesbian or bisexual David Abbott and Joyce Howarth 2005 http://www.bristol.ac.uk/norahfry/research/completed-projects/secretloveseasyread.pdf

www.lgbtcancer.com for lesbians, gays, bisexuals and transgendered people with cancer

Gay and Lesbian Ostomates a support group for the gay/lesbian, and bisexual ostomate (or other type of diversionary procedure), their partners, family, caregivers and friends. http://www.glo-uoaa.org/

Coming Out -- A Gay Man’s Journey with an Ostomy www.c3life.com/ostomy/community/story_view.aspx?id=17

A Bill of Transsexual Rights
http://individual.utoronto.ca/james_cantor/blog9.html

Press for Change advises people on transgender law www.pfc.org.uk

There is no word for it Laura Bridgeman and Serge Nicholson 2012 Hotpencil Press. Testimonies revealing what it’s like to be transgenered, go though transition, start new relationships and enjoy sex

National Name-calling Week www.youthresource.com

Coming Out www.nytimes.com/interactive/2011/05/23/us/20110523-coming-out.html?ref=us#

Youth Guardian Services
provides online support services to gay, lesbian, bisexual, transgendered, questioning, and straight youth www.youth-guard.org

Kenric — "uniting lesbians nationwide" http://www.kenric.org

GEMMA —
newsletter with personal contact ads and a mail-forwarding system
gemmagroup@hotmail.com

Loneliness and social isolation

The Lonely Society Jo Griffin 2010 The Mental Health Foundation www.mentalhealth.org/campaigns/loneliness-and-mental-health


Masturbation

Handisex an organisation in Copenhagen which provides an advocacy service enabling mobility impaired adults to enjoy sex toys so they can reach orgasm www.webwiki.com/handisex.dk

Sex for One — the joy of self-loving by Betty Dodson 1996 Crown

The Ultimate Guide to Orgasm for Women by Mikaya Heart 2009 Cleis

Medications that interfere with sexual function and pleasure

Are your medicines disrupting your sex life? a short account on NetDoctor which is very much aimed at men www.netdoctor.co.uk/sexandrelationships/medicinessex.htm

http://www.aarp.org/health/drugs-supplements/info-04-2012/medications-that-can-cause-sexual-dysfunction.html


Medications that interfere with sexual function and pleasure

Drugs That Affect Sexual Function Theresa L, Crenshaw MD, James P Goldberg 1996 Norton Professional Books

Are your medicines disrupting your sex life? a short account on NetDoctor which is very much aimed at men www.netdoctor.co.uk/sexandrelationships/medicinessex.htm

www.aarp.org/health/drugs-supplements/info-04-2012/medications-that-a n-cause-sexual-dysfunction.html

Mental Health

Stigma and the Sexual Isolation of People with Serious Mental Illness Eric Wright, Dustin E Wright, Brea Perry and Carrie E Foote-Ardhah 2007 Society for the Study of Social Problems, Inc.

Sex and Mental Health in Old Age Gary J. Kennedy MD, Moises M. Martinez MD, and Nicholas Garo, MD Primary Psychiatry. 2010;17(1):22-30 Downloadable online

Grossly disinhibited sexual behavior in dementia of Alzheimer’s type Dhikav V, Anand K, Aggarwal N. Arch Sex Behav. 2007;36(2):133-134

Human Sexuality and Mental Illness: Consumer Viewpoints And Recovery Principles findings and recommendations from a focus group of patients inside a mental health hospital PDF online

Sexual health matters – for mental health explores sexual health and sexuality, sexual risk, sexual violence, abuse and trauma and making a difference in your practice www.scie.org.uk/publications/elearning/sexualhealth/index.asp

Sexuality And Mental Health about LGBTI in particular
www.counselling-directory.org.uk and www.mind.org.uk

Menopause

The Daisy Network supporting those affected by premature menopause www.daisynetwork.org.uk

Motor Neurone Disease

Sex and relationships for people who have motor neurone disease and their partners http://www.mndassociation.org

Muscular Dystrophy

Muscular Dystrophy Campaign leaflets Becoming a Man and Becoming an Adult
http://www.muscular-dystrophy.org/assets/0001/6199/Transition_booklet_web.pdf
http://www.muscular-dystrophy.org/assets/0001/6097/Transition_guide_report_web.pd

Interviews and Personal Stories http://www.muscular-dystrophy.org/about_muscular_dystrophy/yourstories/interviews/3018_sex_and_disability

Talking about Sex http://www.muscular-dystrophy.org/how_we_help_you/living_with_muscular_dystrophy

Personal Relationships, Sexuality and Muscular Dystrophy
http://www.muscular-dystrophy.org/how_we_help_you/publications/1928_personal_relationships_and_sexuality

MS

Multiple Sclerosis & Sex www.disaboom.com/sexuality-and-disability/multiple-sclerosis-ms-symptoms-sex

Sexual Dysfunction and MS www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/symptoms/sexual-dysfunction/index.aspx

Sexuality and MS with a Guide for Women and a Guide for Men by Nicki Ward-Abel 2007 Multiple Sclerosis Trust

Sexuality, multiple sclerosis and women — Foley FW, Sanders A, in MS Management 1997; 4:1-9 http://informahealthcare.com/doi/abs/10.3109/13682828309012237

Pelvic Floor Physiotherapy and Female Intimacy in Multiple Sclerosis — by Taina Vahtera. Physiotherapist, Masku Neurological Rehabilitation Centre, Finland. http://www.msif.org/en/about_ms/ms_by_topic/continence/articles/pelvic_floor_phy.html

Older People in Care Homes

Older people in care homes: sex, sexuality and intimate relationships An RCN discussion and guidance document for the nursing workforce PDF online

Sexual health and the new ageing — Merryn Gott Age and Ageing, Volume 35,I ssue 2 Pp.106-107 http://ageing.oxfordjournals.org/content/35/2/106.full

Sexuality in older age: essential considerations for healthcare professionals — Abi Taylor and Margot A. Gosney Age and Ageing 42 issue 2 March 2013 http://ageing.oxfordjournals.org/content/early/2011/07/19/ageing.afr049.full

Sexuality and Dementia — Alzheimer Scotland Information Sheet IS28 downloadable from:
http://www.alzscot.org/pages/info/sexuality.htm

Pain During Intercourse

Pain During Intercourse and Chronic Pelvic Pain for Men
www.goofyfootpress.com/links/pain-men

Pain During Intercourse and Chronic Pelvic Pain for Women http://www.goofyfootpress.com/links/pain-women/

Parkinsons Disease

Parkinson's Disease and Your Sex Drive www.disaboom.com/sexuality-and-disability/parkinsons-disease-and-your-sex-drive

Parkinson's Disease and Sex www.disaboom.com/sexuality-and-disability/parkinsons-disease-and-sex

Peyrones Disease

Peyrones Disease Martin K. Gelbard M.D. www.peyronies.org

Phimosis

Treating Phimosis with Masturbation 1997 Beaugé M. The causes of adolescent phimosis. British Journal of Sexual Medicine 1997; Sept/Oct: 26
www.cirp.org/library/treatment/phimosis/beauge2

Psoriasis

How to Have a Happy Sex Life When You Have Psoriasis http://www.health.com/health/condition-article/0,,20234521_2,00.html

Psoriasis, sex and relationships
www.morethanpsoriasis.co.uk/sex-and-relationships

Psoriasis linked to sexual dysfunction in men
http://www.news-medical.net/news/20120601/Psoriasis-linked-to-sexual-dysfunction-in-men.aspx

Psoriasis and sex: a study of moderately to severely affected patients Gupta MA, Gupta AK. International Journal of Dermatology 1997 Apr;36(4):259-62 http://www.ncbi.nlm.nih.gov/pubmed/9169321




Prostatitis

Chronic Prostatitis information on Chronic Prostatitis (CP/CPPS), Bladder Pain Syndrome/Interstitial Cystitis (BPS/IC) and Pelvic Myoneuropathy www.chronicprostatitis.com

Rehabilitation

Sexual aspects of rehabilitation: The client’s perspective Northcott Rebekah, Chard Gill (2000). The British Journal of Occupational Therapy, 63(9): 412-418

Addressing sexual activities in inpatient rehabilitation Physical Disabilities Special Interest Section Quarterly, 29(4): 2-3, 4Patria L (2006)

Safer Sex

www.en.wikipedia.org/wiki/Safe_sex

www.nhs.uk/Livewell/sexualhealth

Semen Allergies

Semen Allergies http://www.goofyfootpress.com/blogs/PaulsBlog/semen-allergies

Sex Toys

The MA+Guide — A guide to More Accessible sexuality-related assistive technology comprehensive list of sex toys that might be suitable for disabled people by Narelle Higson (Occupational Therapist) The Multiple Sclerosis Society of Western Australia (Inc)
http://www.mswa.org.au/assets/templates/main/documents/Member%20Services/OT/Guide.pdf

Tips on Adapting Sex Toys http://www.comeasyouare.com/default/index.cfm/sex-tips/sex-and-disability/ tips on adapting sex toys

Desire and Pleasure fpa
http://www.desireandpleasure.co.uk

Sexual Abuse

Psychological assessment of adult survivors of childhood sexual abuse within a naturalistic clinical sample Callahan KL, Price JL, Hilsenroth MJ (2003) Journal of Personality Assessment, 80(2): 173-84.

Childhood trauma with specific reference to sexual abuse: critical role of the health care professions Jansen CA (2003) . Africa Journal of Nursing & Midwifery, 5(1): 3-9

Sexual Advocacy

Sue Newsome (who appears in our training film) talks to clients and patients to find what their sexual needs are and helps them find ways to meet these needs

Becky Adams of Para-Doxies offers a similar service www.Para-Doxies.co.uk

Greg Sams can help by email and phone in booking services see www.TLC-Trust.org.uk

Handisex in Copenhagen is the pioneer in sexual advocacy, also using vibrators when required www.webwiki.com/handisex.dk

People First — support self advocacy groups of people with learning difficulties for people with learning disabilities across the country http://peoplefirstltd.com

Sexual Diversity

Kink Aware Professionals run by the American NCSF (National Coalition for Sexual Freedom) and is available for psychologists, psychiatrists, doctors and lawyers to list their services as friendly towards people in the swinger, BDSM and poly scenes, some in Britain http://www.ncsfreedom.org/index.php?option=com_keyword&id=282

Pink Therapy provides a list of gay and sexually diverse sex therapists around the country www.pinktherapy.com

Playing with Disabilities about how some disabled people involve their impairments in their BDSM play, by Angela Stassinopoulos, 2008 Power Exchange Books

Sexual Services for Disabled People

TLC www.tlc-trust.org.uk

EASE: Equitable and Accessible Sexual Expression — a disability rights group in  Vancouver dealing with challenges many people with disabilities face when it comes to sexual expression

Short Life Expectancy

Sexuality Working Alliance Group SWAG group of professionals working in
this area meeting regularly at the Open University, coordinated by Together
for Short Lives
www.togetherforshortlives.org.uk

Sex and young disabled people with progressive conditions by Dr Darja
Brandenburg - View PDF

Sexuality in the palliative - terminal phase of cancer Gianotten WL..
Sexologies 2007; 16: 299-303

Sexual Health in the terminally ill 2011Gianotten WL, Hordern AJ. In:
Mulhall JP, Incrocci L, Goldstein I, Rosen R, (editors) Cancer and Sexual
Health, New York, Humana Press, 2011: 577-587

A Heideggerian phenomenological study considering the meaning of
sexuality and intimacy for patients and partners of patients with a life-
limiting illness Bridget Taylor 2013 (as yet unpublished)

http://www.guardian.co.uk/society/2007/jan/15/healthsocialcare

Speech Impairment

Speech Pathology Considerations in the Management of Transsexualism–A Review 1983 by Jennifer M. Oates1 and Georgia Dacakis1 School of Communication Disorders, Lincoln Institute of Health Sciences http://informahealthcare.com/doi/abs/10.3109/13682828309012237
1983, Vol. 18, No. 3 , Pages 139-151 Ω

http://www.britishvoiceassociation.org.uk/articles_working-with-transexuals_antoni.htm


Spina Bifida

Sexual Health: Knowledge and Skills for People who Use AAC a teaching tool http://www.accpc.ca/Speak_Up/resources-sexhealthk&saac.htm;

Below the Belt excellent booklet for teens on continence, relationships and sex. ASBAH (now Shine) out of print and hard to find

Sexual Health in Adult Men with Spina Bifida by Gary W Bong and Eric S Rovner 2007 The Scientific World Journal

Spinal Injury

i-Said Michelle Donald works with i-said is a spinal injured woman who trained as a sex therapist and trains health professionals in sex and spinal injury www.i-said.co.uk

Sexuality and Reproductive Health in Adults with Spinal Cord Injury: What You Should Know 2011 Paralyzed Veterans of America and Consortium for Spinal Cord Medicine

Male Fertility Following Spinal Cord Injury: A Guide For Patients 2010 Nancy L. Brackett, Ph.D., HCLD Emad Ibrahim, M.D. Charles M. Lynne, M.D. University of Miami School of Medicine Includes topics such as erectile and ejaculatory function and vibrators, with useful diagrams

Ferticare Vibrator used for ejaculation. Ejaculation can decrease spasms for a period of time www.multicept.dk

Spinal Injury Network a website on spinal cord injury with information about sexuality and professional care www.spinal-injury.net/sexuality-spinal-cord-injury.htm

Providing Comprehensive Sexual Health Care in Spinal Cord Injury Rehabilitation: Continuing Education & Training for Health Care Professionals 1997 Mitchell S Tepper

Spinal Cord Injury Sex and Intimacy Forum for spinal cord injured people and their partner/s, as well as health care professionals, to discuss the subject and present articles written by specialists www.sexsci.me

The Mad Spaz Club section on sexuality with many interesting insights www.streetsie.com/category/sex-love-relationships

Stammer

Stuttering and Dating – 7 Stuttering Tips For Your Dating Life Chazzler DiCyprian http://stutteringdissolution.com/blog/stuttering-and-dating-7-stuttering-tips-for-your-dating-life

Stroke

Sex after Stroke The Stroke Association www.stroke.org.uk

Transsexuality, Relationships and Sex

There is no word for it Laura Bridgeman and Serge Nicholson 2012 Hotpencil Press Testimonies revealing all

Trauma

When Trauma Takes Over Your Sex Life According to a study presented at the 2008 Clinical Congress of the American College Surgeons, almost one-third of patients who have sustained moderate to severe trauma report some type of sexual disorder www.disaboom.com/sexuality-and-disability/when-trauma-takes-over-your-sex-life

Understanding Reproductive Loss: International Perspectives on Life, Death and Fertility by Sarah Earle Ashgate http://www.ashgate.com/isbn/9781409428107

Under-age Genital Cutting

www.circumcision.org on circumcision

www.forwarduk.org.uk on female genital mutilation

NormUK http://www.norm-uk.org/index.html

How the Foreskin Works www.circumstitions.com/Works.html


Visual Impairment

Knowledge, skills and feelings of both parties in Sex Education and Young People with visual impairment, who is limited? talk by Brandenburg, S. in the proceedings from conference on 25 March 1998, Scottish Sensory Centre, University of Edinburgh

RNIB Emotional Support Service — for people losing their sight, experiencing sight loss and living with sight loss “committed to a working practice that
values equality and diversity. “Sight loss does not discriminate and
neither do we” 0303 123 9999, ess@rnib.org.uk http://www.rnib.org.uk/emotionalsupport

War Injured Military

Veteran's Sexual Health Special Issue , 24 / 4, 2012  of the International Journal of Sexual Health focuses on veterans’ sexual health and functioning
http://www.tandfonline.com/toc/wijs20/current

Will Anyone Want to Date Me After a Brain Injury?
Adam Anicich
http://www.brainlinemilitary.org/content/multimedia.php?id=7150

The Battle for Love
http://mitchelltepper.com/the-battle-for-love/

Hidden Battles on Unseen Fronts: Stories of American Soldiers with Traumatic Brain Injury and PTSD
by Celia Straus for the Armed Forces Foundation, published by Casemate Publishers. 2009 www.armedforcesfoundation.org

Breaking the Silence: supporting intimate relationships for our wounded troups and their partners: a call to action by David Satcher1, Mitchell S. Tepper2, Christian Thrasher1, Sharon A. Rachel. International Journal of Sexual Health, 24:6–13, 2012